Obstructive Sleep Apnea (OSA) is a disorder characterized by repeated breathing cessations during sleep, which can result in potentially serious consequences affecting cardiovascular, physiological, neurocognitive, emotional, and psychosocial functioning. Nasal Continuous Positive Airway Pressure (CPAP) is the treatment of choice for this condition as studies has shown that it objectively and subjectively improves daytime sleepiness and health-related quality of life. Despite its efficacy, treatment effectiveness is limited by variable adherence to prescribed therapy. Adherence, defined as greater than 4 hours of nightly use, is reported in 46 to 83% of patients with obstructive sleep apnea and even lesser in pediatric patients. Only 6% of patients who needs CPAP therapy are adherent to treatment. Emerging data suggest that various behavioral interventions may be effective in improving CPAP adherence apart from improvement in symptoms and technical factors.
The Adherence Programme at the Sleep Centre in Al Jalila Children’s aims to improve adherence to the use of CPAP/ BiPAP by supporting the child and family in order to maximize the effectiveness of the therapy. The family closely works with a paediatric pulmonologist and sleep physician, and also involves a paediatric sleep psychologist and a pulmonary function technologist who, together, help them with desensitization plan, equipment maintenance, adherence plan, and behavioural problems related to treatment.